Introducing The Coalition of Chaos

In this blog, I will be thinking out loud, sharing initial ideas of an idea that has been developed for a new group called ‘The Coalition of Chaos’ and how this will operate.  These ideas are very much a ‘starter for 10’, on which I welcome feedback and critique.  I have no idea this will lead (and indeed, there …

Wheelchair Latest: The most unhelpful response ever?

Dear Reader, We’re still struggling to make headway with Fran’s wheelchair.  It is difficult to do this due to lack of clarity on what exactly is required by way of evidence for the appeals process, and a process which itself it both fundamentally flawed and hopelessly outmoded.  The following is the full transcript of the …

Appeal rejected: Our wheelchair woes continue

Today we found out that our appeal for Fran’s e-motion wheels has been rejected.  This despite a letter from Fran’s GP, OT and the Wheelchair Service themselves.  The reason for this is that the criteria for ‘exceptionality’ has not been met.  I won’t rehearse that exceptionality criteria here, but suffice to say that all the clinically …

We need to talk

Every so often, I read something that stops me in my tracks and makes me sit up, providing a sobering reminder of the daily challenges that face disabled people like me. The latest one of these moments was research from Sense which revealed that loneliness was highly reported by disabled people. Perhaps even more shocking …

General Election 2017: Feeling Apprehensive

So I’ve seen the Bedroom Tax, PIP and a raft of other measures to make life harder for disabled people.  What impact has the General Election debate had, and where is this disabled voter left feeling as a result?  One word sums it up: Nervous. Should the Tories be re-elected, further welfare cuts seem likely, and Jeremy Hunt seems to be …

The War Behind the Door

Hello.  It has been a while since I last wrote.  Apologies for my apparent neglect dear reader.  Life has taken over in lots of ways, thankfully a lot of them positive. This morning I was lucky enough to be asked to appear on BBC Radio Cambridgeshire to talk about a piece of research by Scope …

Personalisation: The Illusion of Choice?

Dear Reader, I’m aware my blogs may seem a little melancholic of late.  Rest assured, I have the ‘Get Home Happy!’ playlist on Spotify in full flow as I write this.  I’ll refrain from swearing at this early juncture, but recent reflections and experiences have shown me how profoundly difficult life can be for disabled …